I don't even know how to post a message. I have never had time for things like this. I am a Christian married woman. I have been married 20 years to one man and we have three children, two teens and one seven year old. My husband has Huntington's Disease. It is a serious neurological degenerative disease. He has dementia at age 48. I care for him and the children and work full time. I am the sole family support. This disease comes on slowly and the symptoms look very much like someone being lazy and irresponsible. They cause quite a bit of troulbe. But the real reason is their brain cells are dying. It is genetic. Each of my children has a 50% chance of getting this disease. Since little is known about it it took 13 years for us to get a diagnosis. During that time there was alot of up and down financially until finally 7 years ago with the birth of our last daughter, my husband never worked again or drove a car or made a decision. Now he cannot care for himself. I have no family that is near. To save us financially after trying to earn a living in NY i sold the house there and moved us to North Carolina. With the Lord's guidance I was able to secure a job, buy a home here (with cash, I have no credit) pay off creditors and buy a car (also with cash) I have taken very good care of my family. My kids are good kids. As hard as I have worked though it is not enough. I believe that tomorrow I will be fired from my job. Not because of any misconduct or lack of hard work but I can't make the sales numbers they would like quick enough. I really loved this job and all of the accounts I have taken care of. I don't have much fight left I am so tired. Finally we were doing well financially. I haven't the time to make friends and support systems here so having enough money to care for everyone takes the pressure off of me. I was even able to begin working out at a club and losing the stress weight I had gained. I have been getting into good shape, keeping up with all my family duties and time with the Lord and I just don't know why he would take this away from me. i have been a good and loving wife, even when our church back home thought I should separate from my husband because of his behavior- which I knew was not him, I knew who I had married. I have found medicine and supplements that have brought him back to a good level of functioning and out of the psychosis state he was in. He can again understand us and bathe himself and eat on his own. Why would God desert me like this? I really am so tired and I am not up for another long fight and no money and new job adjustments. I can't say everything here. Someone tell me why?
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