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Author Topic: isolation  (Read 1159 times)
technological
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« on: August 11, 2005, 12:14:04 PM »

Hi. I am a 20 year old girl. I am suffering from a genetic skin disorder called Keratosis Pilarsis. It is said to be uncurable. Although Doctors aren't sure. I really need help. I can barely get through day to day. I try my best to hide it. I have only told one person about it in the last five years. I have had it since I was six. It has gotten worse. I went to the derm and he said mine was a severe case. As far as they know it doesn't do anything to the body really besides skin irratations. I am so embarrased by this. I have been rejected so many times by it. I don't know who to trust. I just want to be healed. I don't want to deal with it anymore, I can't cope. It is like a curse. This one lady told me how there is such thing a generational curses and that is exactly what I feel like this is. Just seeing it reminds me of witches or something. It is crazy. I can barely even shave with out having a problem. No matter what I do it is just one problem after another. I am a Christian and I know God is Lord and he has the power to heal and nothing is to big for him. I am just so confused in my brain and I am constantly in turmoil over this. I feel like I am going crazy. I just cry inside all of the time. I am very blessed and I am thankful for everything God has blessed me with. This Kp thing just rears its ugly head in my face and haunts me day and night. I feel cut off from others. I now know how the lepers felt. I just want peace. Will someone please agree with me in prayer thanks. And if anyone can help me or anything at all. That'd be great. I feel so alone! I can't deal with it anymore. I just can't! Thanks.
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Shammu
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« Reply #1 on: August 11, 2005, 12:22:55 PM »

technological, yes I will pray for you. That God lifts you for this disorder.
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cris
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« Reply #2 on: August 11, 2005, 12:56:38 PM »

Hi. I am a 20 year old girl. I am suffering from a genetic skin disorder called Keratosis Pilarsis. It is said to be uncurable. Although Doctors aren't sure. I really need help. I can barely get through day to day. I try my best to hide it. I have only told one person about it in the last five years. I have had it since I was six. It has gotten worse. I went to the derm and he said mine was a severe case. As far as they know it doesn't do anything to the body really besides skin irratations. I am so embarrased by this. I have been rejected so many times by it. I don't know who to trust. I just want to be healed. I don't want to deal with it anymore, I can't cope. It is like a curse. This one lady told me how there is such thing a generational curses and that is exactly what I feel like this is. Just seeing it reminds me of witches or something. It is crazy. I can barely even shave with out having a problem. No matter what I do it is just one problem after another. I am a Christian and I know God is Lord and he has the power to heal and nothing is to big for him. I am just so confused in my brain and I am constantly in turmoil over this. I feel like I am going crazy. I just cry inside all of the time. I am very blessed and I am thankful for everything God has blessed me with. This Kp thing just rears its ugly head in my face and haunts me day and night. I feel cut off from others. I now know how the lepers felt. I just want peace. Will someone please agree with me in prayer thanks. And if anyone can help me or anything at all. That'd be great. I feel so alone! I can't deal with it anymore. I just can't! Thanks.

Hi technological,

I see you're new to CU....................WELCOME.

I read your posts and did a bit of research on the net.  Here are 2 sites:

http://www.keratosispilaris.org/

http://www.dermadoctor.com/pages/newsletter51.asp?WID=%7B99CCA1DE%2D17F0%2D429A%2DA...

You can go to your search window and type in Keratosis Pilarsis Alternative Treatments as well as just Keratosis Pilarsis.  This is what I did.

You will be in my prayers.  There must be an answer for this skin condition..............maybe you will be the first to stumble upon it with God's help.  Keep searching and looking.

I would imagine you've already been to these websites, but just in case you haven't, check them out.

Grace and peace,
cris

 
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nChrist
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« Reply #3 on: August 11, 2005, 01:16:03 PM »

Hello Technological,

WELCOME!! to Christians Unite.


I will be praying for you that God leads you to the best and most appropriate treatment. In the meantime, please keep praying and lay everything at the feet of JESUS.

Love in Christ,
Tom

1 Corinthians 2:2-5 ASV  For I determined not to know anything among you, save Jesus Christ, and him crucified.  And I was with you in weakness, and in fear, and in much trembling.  And my speech and my preaching were not in persuasive words of wisdom, but in demonstration of the Spirit and of power:  that your faith should not stand in the wisdom of men, but in the power of God.
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